I have just been reading through “The Parkinson Autumn 2018”. It appears there is nothing in the way of help for those of us with severe hearing loss. Almost everything we do, relies on hearing. From morning to night, there is constant sound from something.
Sound is information. You can learn a lot from the kitchen radio if you can hear it. To me it
s a constant distorted noise. I often wish I could throw it out of the window, but then my wife wouldnt be able to hear it. Self control is another thing you learn…
There are over ten million people in the UK, who are hard of hearing, or deaf. It is not necessary to exercise to music, but simple conversation is almost impossible if you cannot hear.
I have a moderate to profound loss. There is no hearing aid, that will make me understand in a group of people anywhere, Lip reading is also very difficult if your sight is poor. Going to the theatre, can be a waste of money. Some cinemas do have subtitles, but parties, be they Christmas or Birthday, are a nightmare.
I have had thirteen years of this, and you can understand why some people shut themselves away, not wanting to meet others. This, we are told, is bad for us, and can cause depression, and other unwanted conditions.
Fortunately, I do go out. Communication is very difficult, and involves a certain amount of guesswork, and luck. You find other people do not understand your frustrations, and do not know how to help, and often they can
t. Its your mess, and you have to get yourself out of it.
So my Parkinsons, apart from affecting my walking, and trembling hands, is really nothing to worry about- i
m glad to say, and I do not think about what the future could bring. Hopefully, thats a long way off.