Thank you for taking the time to engage with this survey. We have worked with a trusted survey company to develop these questions designed to help us frame the everyday experiences of people with Parkinson’s so we can share them in the media. These include topics such as parenting (at any age, if you click you are a parent) and body image, as we know from feedback from the community that Parkinson’s can impact on all of these areas of everyday life.
The survey has also been mapped out so you shouldn’t be seeing questions that are not relevant to you based on your previous responses. We will feed this back, alongside any other technical glitches, to our agency.
The survey has quality check screeners which will screen people out who select impossible region and nearest city combinations (e.g. saying you live in Northern Ireland, but then selecting a nearest city of Portsmouth). Please check the geographical area carefully.
Because we are UK-focused, this survey is only open to people in the UK but we would recommend looking at the websites of Parkinson’s charities based in the country you live in to see if they provide similar opportunities to get involved.
For this particular survey, we are only gathering the experiences of people with Parkinson’s, but carers can fill it out on behalf of the person with Parkinson’s. If you are a carer, we have other surveys throughout the year, for example, you can complete our ‘What Matters Most Survey’ and share your views on our future campaigns: https://www.parkinsons.org.uk/get-involved/campaigning-change
If you have any other problems or feedback, please contact: [email protected]