What I look like on the outside, is not how I feel on the inside. People often say I look well but especially during the lockdown and with a lack of routine, I felt like a square peg in a round pole. My symptoms have worsened. I’m falling over frequently and my mental health has deteriorated, but when my medication is working you would have no idea.” (Person with Parkinson’s, 2021)
People with Parkinson’s frequently tell us that a lack of understanding from the public is one of the biggest challenges they face.
Life with Parkinson’s can be hard. There are challenges that people aren’t aware of and over the last 12 months with the coronavirus pandemic, it’s been especially hard. As a result, it’s more important than ever that we ensure that they are not left out of public conversations.
We want to get Parkinson’s better understood and included in everyday conversations. This survey gives you the opportunity to tell us more about how Parkinson’s affects your life, so we can use your experiences to highlight its true challenges in the media.
To do this, we’re conducting a survey of people living with Parkinson’s and their carers and need as many people as possible to participate.
The survey is being managed on behalf of Parkinson’s UK by Opinium, an independent research agency and it takes about 15-20 minutes. It’s all confidential and anonymous, but if there are any questions you don’t feel comfortable answering, just click “next” to move on.
Over to you
Please encourage as many people as you can to take the survey, it can be found online here. https://url.quenchtec.net/ZQYaxpWZ
Thanks in advance!