I live in Warrington, Cheshire, and when I was first diagnosed in February 2007 I was told that there was no PD nurse in my area. However, my neurologist referred me to a PD nurse team at the Walton Centre For Neurology and Neurosurgery in Fazakerley, Liverpool. They have been very helpful to me, and one of them even came and visited me at home when I was diagnosed, as it was difficult for me to get there.
Since then, I have phoned them occasionally about issues which have arisen regarding my meds, and I have always found them to be helpful and informative. They are sometimes difficult to get hold of, but if you leave a message, they always ring you back.
Recently I have discovered that we now have a PD nurse in Warrington, who has apparently been in post since January this year! I only found this out by chance, through talking to my PD Information and Support Worker, who I had contacted about another matter. The Warringtn PD nurse visited me at home recently.....she was very helpful and gave me some advice about medication. She is also helping me sort out an issue with my referral to a different neurologist. She does clinics at various health centres in Warrington, so in future I can make an appointment to see her at whichever one is convenient for me.
So.....for once, I guess I am lucky! PD nurses are usually friendly, helpful, nd they often know more than the neurologists about PD meds. And they are certainly more approachable than most neuros!
Anyone who has been told previously that there is no PD nurse in your area....it's worth checking again, in case they have sneaked one in without you knowing, like they did in my area!