My mum has late stage Parkinsons. She will be 80 this year in July. She was diagnosed in 2003 at age 62.
She is in a bad way. Sleeping a lot more recently- she is very fragile. Used to be able to go for a daily walk with my dad but unable to make many steps at the moment.
She has frequent postural drops which are frightening. I am currently spending the weekend with my parents and young children so I am experiencing those first hand.
I had to lower my mum to the floor when this happened in the toilet today. She is saying that she is freezing cold and wants to wear lots of layers.
She is slow in her thinking and words don’t come easily but she is still ‘herself’ if that makes sense- other than getting confused sometimes.
My dad is the main carer and age 82. I don’t think he can take this stress much longer and it can’t all be on the weight of his shoulders (literally) so I know I need to chat to my brother about what we can even do.
Can anyone who has lived through this situation give any words of wisdom? Clearly as a starting point, my dad needs support and a care package put in place. I guess I should try and talk to my mum’s doctor and try to assess exactly where she is in late stage Parkinsons.
It’s very sad when mentally she is not so bad and physically she has to deal with so much. It’s very hard to watch and stressful not knowing how to navigate for the best outcome for everyone. My children are very young- age 4 and 5. Any wisdom is much appreciated. Thank you