New here
Diagnosed in 2017
Held off starting medication until last year
Expected miracles but minimal response
Parkinson’s as turned me into total recluse
I am absolutely horrified by this disease
Cannot bear anybody seeing me
Spend my days led on the bed
Haven’t seen my mum in four years
Do not leave the house
My partner of 40 years has had enough of me
Cannot understand why I don’t want to go out says he just wants to have some fun. I am boring. Makes comments like you need your arm cut off
I feel totally alone like my life is over
Terrified about what lies ahead
My mood ranges from such anger to utter sadness
Would like to find somebody to chat to online
Any words of wisdom would be welcome
Hi Kittykatt and welcome to the forum. We’re so very sorry to hear that you’re struggling. Please know that you’re not alone. We’re here for you and so are others in this community.
We highly recommend reaching out for help and support. The Samaritans are available 24/7 on 116 123. If you’re in immediate danger, please call 999 for the emergency services.Our free and confidential helpline is also available to anyone affected by Parkinson’s: 0808 800 0303 and is available Monday - Friday 9am to 6pm and Saturdays 10am - 2pm.
If you’re happy for us to contact you please send us a direct message and we can arrange for a member of the team to give you a call.
Sending all our love 
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Hi, I’m so sorry to hear of your struggle please don’t let this take over your life anymore. Try and regain control one small step at a time, this will help towards your confidence. I go to a Boxercise class once per week and I find it really great. I’ve meet other PD suffers and having a chat with them is helping me so much.
Hannah
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Hi kitty,
You have done well not to use PD meds until now which suggests you are a slower progression PD.
There are therapies that can be used along side PD treatments.
Diet , intermittent fasting, exercise and red light therapy using photobiomoduation.
Many videos by distinguished doctors on YouTube for you to research.
Try a small walk quarter of a mile out and when you get back you have done half a mile.
The PD can effect your mood and energy and exercise will change that.
One small step for you one big step for the improvements for you , build it up as you are able.
If at first you don’t succeed try try try again.
Don’t give in . I know it’s hard but once you start it gets easier.
Best foot forward.
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Kitty, head on over to the social part of the forum. There are some wonderfully amazing creative writers & poets here. It’s a great way to explore and express yourself.
dear kitty kat
Twenty minute daily walk will work wonders.
I do grasp the depths that you have reached. But you can float up to the surface.
Your life is not over.
My cat was a huge help. Now next doors cats are uplifting.
My village church runs a few weekly sessions, which are a revelation.
Very best wishes
Sooty
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Dear Kitty,
I read your post a few days ago but it’s been playing on my mind.
Firstly it’s my husband who has PD not myself. But here are a few of my thoughts:
• Firstly I would have a chat with your doctor, they might feel a short course of antidepressants might just help you to ease the depression and anxiety you’re feeling.
• Have you thought of counselling? That may help you come to terms with your diagnoses?
• My niece couldn’t go out the house and had cognitive behaviour therapy which really helped her return to a normal life.
• I don’t know your age but could some of your symptoms be menopausal? Have you had your hormones checked ?
• When a friend of mine was struggling she would give herself one small task a day, it maybe to sit in the garden for five minutes, ring a friend, on good days she would try baking, but just one thing a day and build on that.
• When you get better , join a local group for support and do whatever exercise you can. There maybe someone in your local PD support group who would do a home visit, don’t isolate yourself.
There are lots of things out there that may help you Kitty but you have to be the one to pick up the phone and ask for help.
When you’ve finished reading this, ring the doctor, ask for an appointment and go from there, this could be the start!
I wish you well Kitty, onward and upward my girl, you’ve got this!
Hi Kittykatt,my heart goes out to you,and by coming on to the Forum you’ve taken the first brave step in facing up to this wretched disease. Please see if your doc will prescribe a mild anti-depressant, seek out the local Parkinson’s support group, start living again. You’re not alone.
Kitty
there is always someone here to listen you are never alone , if you want someone to talk to try the helpline or drop me a message and i will get in touch
Hi KittyKatt, I was diagnosed with Parkinson’s 12 years ago, and it took me 10 years to admit that I do have the disease. You haven’t said what your symptoms are except the mental health issue. I had freezing issues which made me fall over and couldn’t get out of the house which then has a knock on effect with my mental health. If you go onto theParkinson’s web site you will find help for you, either by ringing the hot line or reading or ordering the many booklets on offer, there are booklets for your partner to read and hopefully make him understand what Parkinson’s is. You should also find out where your local Parkinson’s group is, they will hold a coffee morning me once a month, it is well worth going to these with your Partner or without (although he will benefit by going, as he can talk to other carers) as the people there are just like yourself and you can talk about your issues, they have games to play, trips out, the professionals like the speech therapist, The Falls Clinic, Mental health team and exercise groups come every now and again and if you need their help they will sign you up for one of their courses. I know that the Mental Health Team will now see everyone who has Parkinson’s and you will get 8-12 weeks therapy with them as they now class it as ptsd. Your parkinson’s nurse should have told you about all of this, but the website Parkinson’s UK.org have everything to help you. So please try that. I was lucky when I went to a coffee morning for the first time, The Falls Clinic were there and signed me up for 2 courses which helped me so much that I could stand and balance myself, then I joined another group which helped with my fitness, all of these practitioners were Parkinson’s trained and now I can actually go out by myself which has boosted my confidence no end. It will be a slow process but it is well worth the effort. If you need anymore help with this reply back to me or call your Nurse or Parkinson’s.
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I was so saddened to read your post. Just be assured life isn’t over!! I know this is a horrible condition. I was diagnosed 12 years ago, but I made up my mind then that this condition would not beat me. I had too much living to do! I thank God every day for a loving husband and family. I led a community choir for 12 years and was so blest by the friendship and support I gained from that. I have three beautiful grandchildren who visit often.
I know it is hard, but try starting each day by thinking of one thing you can be thankful for. This could be a small step towards being more positive and gradually building your self confidence. In the replies you have been given so much helpful advice. There is so much you can do to find the positives and value in your life in spite of your condition.
Take care - and be thankful!
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