I was diagnosed with PD in March 2025 privately, since then I have been on co-caroldopa which has made a difference to a lot of my symptoms. I now have an NHS appointment with PD specialist March 5th 2026.
My main issue is feeling lightheaded, swimmy and unbalanced when out for a walk, does anyone have the same issues ?
Hello @MARTYNI, welcome to the forum. We hope you find it helpful and benefit from asking questions, reading posts from the community, and hearing from people who really get it.
Thank you for sharing your symptoms. It’s good to hear that you have an appointment for a Parkinson’s specialist in March. We hope this is helpful.
Getting a diagnosis of Parkinson’s affects everyone differently. You may be feeling a range of different emotions. No matter how you’re feeling, we are here for you. We have a range of newly diagnosed resources to support you and your family, friends, and others close to you: Newly diagnosed with Parkinson's | Parkinson's UK
We hope the community can share more about their experience and symptoms. There are over 40 symptoms of Parkinson’s. From a tremor or stiffness, to problems with sleep and mental health. Everyone’s experience is different. Motor symptoms, such as feeling unbalanced, as you shared, you experience affect many people with Parkinson’s. You can read more about Parkinson’s symptoms on our website: Parkinson's symptoms | Parkinson's UK .
Take care 
Hello Martyni,
Welcome to this forum - I always read up here on the things that are troubling me or are of interest.
I wondered if you were experiencing side effects or adapting to the co-caroldopa and this was making you feel swimmy? I say this because I certainly felt that way for months after starting Levadopa therapy - but can report that it has become less of a problem as time has gone by.
Having said that, I think it’s always important to report the sensations we are feeling to the GP in case it could be something other than PD?
Jon
Hi MARTYNI
I am also on Caroldopa, and experience the same symptoms, lightheadedness and feeling drunk wandering to one side when out walking. I spoke to my consultant about this just the other day. all she said was that perhaps I should use a walking stick for safety. It will be interesting to here what your specialist advises.
Dave3