Hi Kate, I read your post with great interest as my daughter and son want to support me. I was diagnosed a few weeks ago, but my symptoms can be quite severe at times.
Since I was diagnosed, I have learned as much as I can about the disease. At first I cried a lot, as I was in such shock. I kept looking to the future and panicking about what it would be like, whether I could look after myself or not. I was a little bit down.
I made the decision to do as much as I possibly could for myself, in the hope that I will deter the progression of PD. Sometimes our state of mind is more important than anything else, because it determines what you can, will or don’t do. Its a personal choice. I have started dancing in my living room anytime I feel like it. I just put the music on and dance. I also started Pilates and walking a lot which is really difficult and sometimes painful. I know when to stop. I am just hoping that it will give me more mobility, than doing nothing.
The way in which my children help me is mainly through conversation, and offering to come on walks with me, or out for coffee. Personally I find being out of the house, doing something, helps me to stay positive.
Your mum might be a bit depressed with the PD. All you need to do is be there, be positive, chat, maybe suggest a walk or something out of the house. Encourage her.
There is no such thing as a magic pill, she could be waiting forever. Life is for living now, and for being grateful that you have each other. You and your brother are trying to do your best, just don’t give up on her. We are all different. I do hope this is a little bit helpful and I wish you, your brother and your mum all the best of luck xxx
Perhaps, you could show her this, let her know how you feel. That might help her too. xx