I’m here out of curiosity to ask what sort of pain medication people take. My husband has been feeling the effects of PK full force now for some time and the main problem (aside from all the typical PK problems) seems to be the amount of chronic pain he is in. He has seen countless physio’s, had laser treatment, steroid injections but nothing seems to help.
His man areas of main are in the centre of his neck (the rigidity pushing him forward), his shoulders (from constant tremors) and leg pain which we think is coming from his hip.
I know from life before PK that he has a high pain tolerance so for him to say his is a ‘9 or 10 out 10’ for pain almost all the time is really concerning. From the feedback he has had from his GP (who sent him away with Paracetamol!!!) he thinks that it’s just the way his life is now that along with PK he will live in constant pain - is he right? Should I stop nagging him to talk to more Doctor’s or do I need to push him to have a proper pain management structure in place?
He’s been referred for DBS about 5 months ago, but we’ve not heard anything yet.
Any advice or help or what pain relief you take would be much appreciated.