Living in constant pain


#1

Hello,

I’m here out of curiosity to ask what sort of pain medication people take. My husband has been feeling the effects of PK full force now for some time and the main problem (aside from all the typical PK problems) seems to be the amount of chronic pain he is in. He has seen countless physio’s, had laser treatment, steroid injections but nothing seems to help.

His man areas of main are in the centre of his neck (the rigidity pushing him forward), his shoulders (from constant tremors) and leg pain which we think is coming from his hip.

I know from life before PK that he has a high pain tolerance so for him to say his is a ‘9 or 10 out 10’ for pain almost all the time is really concerning. From the feedback he has had from his GP (who sent him away with Paracetamol!!!) he thinks that it’s just the way his life is now that along with PK he will live in constant pain - is he right? Should I stop nagging him to talk to more Doctor’s or do I need to push him to have a proper pain management structure in place?

He’s been referred for DBS about 5 months ago, but we’ve not heard anything yet.

Any advice or help or what pain relief you take would be much appreciated.

thanks
Andy


#2

Hi theŕe I have rheumatoid arthritis everywhere in my body.plus PD and like your hubby I live in constant pain and recently I had emergency surgery for decompression of the spine. My Dr.is totally different as when he saw the pain I was.in he gave me pregabalin plus a tablet for depression but was used in extreme cases of pain plus the highest dose of paracetamol plus hydrocodone. And regular prescriptions of .morphine to take as required. This all together made me just about pain free.

Can you not go to another Dr. Hope all gets sorted soon as there is nothing worse than constant pain


#3

Nobody in this day and age should have to live in pain.
Simple.


#4

Hi hubby

You are so right but we do, and the more we look at ways to stop the something else inmy body hjets, it’s almost like tree roots, cut some off one side and the other grows and finds away to stop is doing something. I hope you can take pain killers that work you pain.

Kind regards
Raz


#5

Hi Andy,

Obviously we are all different, but I can tell you what is working for me at the moment. I had mild but near constant pain. After advice from a cousin of mine and after my own research I started taking tumeric root extract (curcumin is the active ingredient). The first few days the pain increased coming to a rather excruciating head after day 4. Then day 5 on the pain has been mostly non-existent, and this is after two months so far.

Bit of background for reference I was diagnosed at age 40 last year and have decided to be reluctant about medication. I take azilect 5mg once a day (since February), vitamin D supplement (most of us are deficient especially people with PD), and the curcumin. Otherwise I am doing yoga twice a week, weight lifting twice a week, and running twice a week.

Hope this helps.

All the best,
Warren.