Hi I have had a Vylex Produadopa pump since September 2024 just after they were approved by NICE in the UK. It transformed my life from being housebound and in pain and gave me my life back by controlling my symptoms and giving me hour and hours of On time. The pump is challenging to manage on a daily basis I won’t lie, but the effect it had on managing my symptoms was like a miracle, so worth it. The Produadopa vials had always contained a pink solution until in December I was delivered a white coloured Produadopa. The leaflet says it can have vary in colour, this was not a variation it was a totally different colour. I used them and immediately had a return of symptoms and pooling and burning at canular site. AbbVie insisted there is no difference in effectiveness between colours, for me there definitely is. I found out there are 3 colours: Pink: White: Dark Amber all totally different in colour and for me anything but Pink does not control my symptoms. I have just had a delivery and now there is a 4th colour, these are Yellow. My condition has gone from being independent and happy to housebound, symptomatic and miserable again. My opinion about a difference in effectiveness is ignored. I know by my bodies physical reaction the colours are different.
Has anyone else had a similar experience with receiving different coloured Produadopa and noticed a difference in effectiveness?
