like you i am carer -but with this difference - we are both 90!
Seems so hard when you have spent a lifetime together.
My wife is - or was - in a nursing home but had to go into hospital on Saturday because she was jaundiced.
making progress and hopefully will soon be able to go back to nursing home.
understand your heartache only too well and wish you well.
so hard to be realistic - you are doing all you can to support you husband and all our thoughts are with you.
Can you have a 'day off' with help from someone? I think this really helped me to relax and recharge the old batteries!
Thinking of you.
Thank you, Mosie, for the suggestion about the groups. I did check, there's not a carers' one near here. I went (on my own) to a local Parky group, just to have a look and didn't feel it was for us - again, maybe because it's still early stages.
I hope we can 'talk' again soon, thank you again for being there.
Im new to here too and as you a carer but for my Dad he is 71 recently diagnosed and struggling to get his head round it all as I am, use this place to say what you feel and dont think that you will bore people as there is so much support on here, and dont feel like you have to be positive on here all of the time as I think alot of people feel better for getting things off their chests and having a bit of a moan sometimes too, I feel quite angry and frustrated by it all and life does seem to kick good people in the teeth we lost my mum to Cancer 15 years ago my sister has been through it too but come out as a surviver and still we remain as positive as possible, somewhere somehow this will all make sense and there is goos stuff out there too, lots of treatments support and caring keep your chin up as much as you can, take care hope some good is coming round the corner for you.
how are you today? your right it would be nice to be asked and its not selfish its normal there are times when I sit listening to people going on and on about all sorts of stuff and just want to scream at them to shut up, but life is like that I guess and we all have to get on with it, stay on here loads of lovely people offering great advice and support and understanding, have a good day hope you and hubby get out in the sun
Good morning Camerarderie, loneliness is a terrible situation to be in, you can be lonely in a crowded room it doesn't have to be in the middle of a bleak dark wilderness, I know exactly your feelings , my first experience of intense loneliness was shortly after learning I had PD when I told my family they were
completely baffled and had no idea of the struggles ahead . I am very lucky ,I have a very supportive clan of Family and Friends who will do anything for me,
but I insist at times that I must do my own thing as my confidence soon goes down hill fast if I lean on others too much,I know this might sound a bit of a contradiction but you have to be lonely in order to deal with the symptoms of loneliness , how many really good friends can you call upon , do you have family members who are compassionate and caring ,an you access any local self help groups
this last suggestion is a good one, I belong to a group called Disabled friends, you don't have to be PD afflicted anyone with any kind of disability can join it is very rewarding , we share our problems, help each other with all sorts of
difficulties ,have trips away for the day, its good and when you get to know everyone the camaraderie element becomes apparent, I would also say that there are many people on this forum , people who I have never met, but who I count among my closest friends , do keep in contact with this forum they can answer so many of your problems and can always be relied upon, we are here to help , if you wish to , you can contact me ,my E mail address is available.
You will be in my thoughts, Kindest Regards
We have stuff in common, there's a ten year gap between me and my husband, and I haven't had him for long enough and it feels so unfair. I love him such a lot, and he's just slipping away little by little in front of me. Chin up, at least we have some understanding people on here.
I don't have any brothers or sisters or family I can really share this with. Hubby has children but they have their own difficulties and I don't feel able to cry on their shoulders.
Not really ready for a group yet, maybe down the line a while.
Night all, thanks for being there.
Hello guys, haven't been on here for a while. The long wet winter is over and we are out attacking our beloved garden - my wobbly husband and I. He's recently had his meds increased and is showing all sorts of vulnerabilities now that weren't there a year ago. We're coming up to Parky's Awareness Week, and I will - like last year - have a cake sale at work, with posters and leaflets available and make a hundred quid or so for the cause. And occasionally people ask me how my husband is, and I say his illness has progressed a bit - and they look away or make some platitude and change the subject.
TALK TO ME! ASK ME! ASK ME WHAT IT'S LIKE, I WANT TO BE ABLE TO SHARE SOMETIMES!!
Ah well. Onward. Summer's coming.