My name is Hope, I am new to this site, and not even sure I am in the right place, but am at my wits end with my symptoms. I have not been diagnosed with Parkinson's, only RLS, but the issues I have seem to be so much more than that. Hoping to find some information on others symptoms and see if mine fit any of them.
Let me start at the beginning, last year in 2016 I had abnormal menstrual bleeding that resulted in such low iron I had to have a blood transfusion as well as a DNC to stop the bleeding. During the excessive bleeding I also had 2-3 weeks of severe insomnia, which made my RLS get pretty bad from, obviously, lack of sleep.
After my DNC in January of this year, about February I started to be jerked awake every 45 minutes to one hour of sleep, like clockwork. My legs shook so bad, I could not rest and then started the insomnia again. For about 2 months I did not fall sleep until 4am to 8am every morning as my body was finally so exhausted from constant leg jerks that it had exhausted itself.
Forward to March of this year I had an EEG done, everything was normal on the EEG, there was only one spike?? as the Dr called it, so he had ruled out seizures. Keep in mind during the entire EEG my right leg ONLY flipped and flopped and jerked and kicked as I am unable to control my right leg any longer. I had a brain only MRI which came back clear.
I was put on Levodopa and was then switched to requip once the MRI came back okay and Nuero decided it was only RLS even though I responded fine to the Levodopa. I assumed an MRI could show for Parkinson's, but am I not correct in thinking that?
I was also diagnosed with sleep apnea though a sleep study, which I felt like once the nuero got those results decided all my issues were just that and the RLS.
I have now started to have issues in my arms and hands. My arms and hands are numb upon waking pretty much every morning and a really strane thing is now when I am resting and I yawn my hands involuntarily close in a fist multiple times and then stop once the yawn is over! I know this sounds crazy! I am losing strength in my hands and have dropped things much more easily as of recently and much more clumbsy and off balance as well...dizzy...think I have a hold of something and I don't.
If I lay down during the day (only take meds at night) I can feel myself half awake/asleep and my right side of body twitching and jerking. This also happened at night prior to medication.
I apologize in advance for this lengthy post and description, but I am at a loss for what is going on with my body and feeling like my Nuero wants to chalk it up to RLS and sleep apnea.
I have an MRI tomorrow for a cervical spine/neck MRI so we will see what that holds.
Does anyone with Parkinson's experience jerking of limbs or is it only shaking and the "pill-roll" that is so often described?