This is for ‘mawoo’ who set the ball rolling on this subject and everyone who posted a reply. My situation has similarities to you all. Diagnosed 2008. Been on Sinemet and Ropinirole (Dopamine Agonist) ever since. This year things took a turn for the worse to the point that I say to myself the first 9 and a bit years have been like a walk in the Park when compared to the last six months or so.
What started off as tremor, shuffling, gormless expression, tiredness etc etc, all of which I coped with fairly well and had a positive attitude. This was helped by the fact that I was 65 when first diagnosed and have been retired ever since.
So I am solvent financially, don’t need or want a job. 50th wedding anniversary coming up. I have been fairly active over my retirement years, but now it’s all change. I can. barely walk now, I seem to be almost constantly in a state of freezing, my feet are playing up, my tremor is hit and miss but sometimes goes off the scale. Slowness doesn’t really describe the rate at which I walk and I am amazed how I manage to keep upright without falling over, but one of these days…
I am constipated and have urinary issues, but don’t we all and I can manage on 3/4 hours sleep most nights. However it’s not all bad. I don’t and never had any pain, if you discount the cramp in my legs and my toes which feel as if the are bent double under my feet. Most of all though apart from feeling fed up now and again I don’t get depressed and apart from what I imagine are the usual cognitive issues that oldies get as they head towards their 80s, I feel in control…
So there you have it Oh I nearly forgot the question. Madopar, aptly named don’t you think. The doctor has got me on it, trying to work alongside the sinemet as it attempts to get the levodopa into my brain quicker and in higher quantities where it can combat my slowness and wearing off/on problems. Is it working. Not really I tell myself and the doctor he says that it’s all about getting the right amount of the levodopa into the body where its needed.
The future. Just keep on keeping on, don’t wish your time away and if you can negotiate a good time for the man who comes around to switch the lights off, then make sure you get a good deal.
Happy New Year,
West Riding a.k.a. Jim.