Thank you kind friends.
Yesterday saw PD nurse and updated him.
Neuro appointment 3 November. He put me on Madopar.
2 days ago I started, apparently PD Nurse has put me on capsules not dispersibles. Said effect lasts longer.
Even though I have anti-sickness pills, so far have been ok.
Just felt a bit space yesterday after 2nd dose that day. Feel tired now.
I really hope they help me as so many of you have experienced.
I am emotionally a lot better and so even though the anniversary of my Mum''s passing occurred 3 September, I didnt have a huge meltdown.
My trip to Norway was great, did experience some anxiety on the flight home when we hit turbulence randomly while flying through a clear blue sky! Then descent to Gatwick nightmare clouds and very windy. Also had terrible anxiety travelling home last Monday on trains from Nottinghamshire to Sussex. Explained to the PD Nurse that I felt every bump and movement on train and felt I didnt want to travel so fast, didnt feel safe. Also happens when passenger in a car, I have always loved travelling and because my grown children are scattered all over, I will be travelling for many years to come hopefully.
PD Nurse told my husband who was at appointment, that when that occurs its because I am crashing because of lack of Dopamine.
ENT appointment next week, have felt that there is something in my throat and occasionally notice when have swallowed food. Also get terrible acid reflux, mainly at night when lying down.
Hope Madopar really helps with tremor and distonia in my foot. I find it difficult to do up shoes with buckles etc. hanging washing, it all feels awkward and slow and it is as if I am a small child learning how to do something. I drop pegs and think whats happening! I do seem to collide into door frames, spacial awareness so different. Subtle but noticeable.
Havent got going with exercise, but do walk sometimes and I do take dips into the sea.
I think you are all very brave and thank you for your honesty and willingness to share.
Oh by the way....LIBIDO back to normal! I ditched Mirtazapine 6 weeks ago and was best thing I did.
I still feel that I have become a guinea pig and that I am on this experimental journey!
Where are you all living, which counties? Maybe we can meet up one day.
Best wishes for you all, hope today is a good one!