My husband has been taking MADOPAR for 4 years after his diagnosis. For 3 years he has taken the 100ml/25ml 4 times a day. Because of hallucinations the dose was halved to 50ml/12.5ml. He was diagnosed with dementia two years ago. At the beginning of this year I asked if he could stop taking the 8:00am pill as he was falling into a deep sleep 10 minutes after and couldn’t wake him till nearly lunchtime. Since missing the 8:00am pill he has been so much better in the morning. He can actually eat his breakfast without falling asleep into it.. However, the lunch time pill and 4:00pm pill have the same effect, 10 - 20 minutes after he is fast asleep for at least a couple of hours and goes into zombie like mode. This problem affects his mealtimes. He tries to eat a hot meal with his fingers rather than a knife an fork and half of it goes on the table and floor. Just the same with a sandwich at lunchtime. I have told the Parkinson’s specialist nurse, by email, this but will have to wait till middle of October for a telephone conversation with her. He is housebound but the nurses don’t make home visits. Does anyone else have this situation and how do you get round having meals.
Hello , not too sure where you are .. insist on a home visit as your husband is housebound.. I know ours do that in Lincolnshire. ¿
It’s disgusting .. having to wait. Until October.. our nurses are just as bad , when I ask for help via phone or email … It’s days until we get a reply..
Unfortunately I think they don’t have the staff to deal with the amount of Parkinson’s patients.. the amount of staff stays the same but Parkinson’s diagnosis goes up by around 30 a day .. !
Is it just the one medication that is given you said dementia what medication is being used for that ! As one type interacts with dopamine and reduces it which may .. not saying it is giving you the problem of over sleeping. No mobility.
Hi @FRANH, we’re really sorry to hear about your husband’s difficulties with Madopar and want you to know we’re here to help.
We appreciate you’ve already emailed your husband’s Parkinson’s nurse. We do have a free helpline, where our specialists can offer advice and guidance about your situation. You can reach us on 0808 800 0303, and the line is open Monday to Friday from 9am to 6pm and Saturday from 10am to 1pm.
Please take care and reach out if there is anything we can do 
Parkinson’s UK Moderation Team
He has 20mg Memantine once a day, rivastigmine patch at night.