I first posted in January 2018 following a short period where I struggled to accept the diagnosis. Please see my Newly Diagnosed post for full details. Now 18 months later I am still in the same position – i.e. I still haven’t told anyone: I am still struggling with work as my writing has deteriorated further and I still haven’t overcome my fear of the medications being offered.
Hence I am posting again two questions relating to management of Parkinson’s through medication and non-medication.
Firstly I would really appreciate an open honest reply from anyone who has experience of starting MOABs, Agonists or Levodopa. I realise that everyone is different, but the constant referral to side effects is stopping me even considering starting. I just feel so ill-informed, so I am reaching out in the hope of hearing back from those who are actually using the medications for your feedback with either good or bad experiences. I am particularly keen to hear from those who have started medication whilst still working and how they have managed the process.
Equally I am keen to hear from anyone who is having success managing their symptoms using: Exercise, Diet (such as grain free), Supplements such as Vitamins & Minerals, Amino Acid Therapy, Meditation & Prayer etc.
I feel quite alone and quite concerned about making a jump to take medication when there may be a different option for me at this moment in time.
Your comments, views and advice will be greatly appreciated.
Thanks in advance to anyone taking time to reply.