Eight years ago I found lifting my left foot onto the clutch pedal felt heavy and aggravated my lower back pains so I eventually bought an automatic car. Three years ago a relative saw my leg shaking and suggested I saw my GP. I had put this down to the challenging situations I was facing with two teenage daughters!!
My GP referred me for a brain scan. She did not share her suspicions so when I was Dx with PD it came as a COMPLETE and utter shock.
For two years I then pushed it to one side but gradually a few more symptoms have crept in. Working part time in an office I found I couldn't type so fast with my left hand. My knee would shake more. My hand wouldn't hold a fork so well. I have a lazy left leg that drags slightly. I get cramps in my foot and my left side is slower to respond and have stiffness of hand and foot. My hand and arm is often cold too. I have to turn around carefully as balance is mildly affected. i am blessed with sleeping well but do wake up momentarily when I need to turn over, which is slow and awkward.
Then I faced redundancy.
I was, surprisingly, kept on - even with my boss knowing I had PD. This meant so much as I had 'put myself on the scrap heap' and was feeling fit for nothing. I now work full time. I am tired by the end of the day but enjoy my job and want to continue as long as I can.
My consultant feels I should start L-dopa. But should I continue 'coping' with the above symptoms or should I embark on taking meds to regain some of the mobility and functions that have been compromised.
It's hard and scary to try to weigh up pros and cons of starting the meds and all their uncertainties and possible side effects and work out when would be the right time. I do not currently have any contact/support from a PD Nurse or support group.
I would really value your views and experiences about this. I know each person's views will vary, but it would be good to hear your stories and experiences.