My father was in his early 40’s when he told that he had Parkinson’s disease. In July he will be 71.
He has good days and bad days, there are more good days then bad. The bad days consist of him not sleeping, he can go through the whole night without falling asleep, despite him taking prescription sleeping tablets. The lack of sleep results in hallucinations, which at times has been a very scary experience for my mum. When he has the hallucinations, he will be tell my mum that there are people in his room, our he will spend the entire day talking to people that are not there, he once called me to tell me that my older sister had ran away with another man… In his world this is all real, so we never challenge it. He also can’t stand the colour red, if there is anything red around him he will ask my mum to remove the item our cover it. We find that if he has sugary drinks/snacks prior to bed, it tends to keep him awake.
My father has never complained about his illness, I know he gets very frustrated at times but he just seems to get on with it. Since summer last year, his mobility went down hill, so going to the supermarket and just going for a walk down the road, is something that he can no longer do, without support and being in a wheelchair. Since he is more housebound, I got him an ipad so that he can listen to music, he goes to bed with the ipad tucked under his pillow! He spends his day listening to old school music.
I don’t know how my dad has coped with this disease for such a long time. His medicine hasn’t really changed much over the years, apart from the adding of the sleeping pill and the anti psychotic
drug he now takes.
If anyone wants to know what he takes on a daily basis am more than happy to share this information in the hope that it may help someone.