I have had PD for nearly 17 years but was able to carry on working until 18 months ago.
I was lucky in a way because I was just reaching retirement age but I was feeling able to work an extra year and received a bonus. I did struggle in the second part of the year but I managed to get there in the end. I must admit that I was.feelng sad but that feeling didn't last for very long.
Since then I've been going to a day centre twice a week. This gives my husband a chance to do what he likes. His first choice would have been playing cricket but he isn't strong enough at the moment as he's just had a knee op so he's taken up Indoor Bowls.and he really loves it!
Unforturtately, I've come to the decision that I'm not feeling safe enough at the moment to go anywhere on my own. This means I spend a lot of time at home but I've spent loads of time filing papers we need to.keep and paying the bills etc. When I have the time I like to paint and learning to play.piano using free lessons on the App.
I have a lady that comes round to see me once a week from my local Community and someone from the carers agency comes to see me for 3 hours once a week. This time is really for OH to do other things but while she is with ma she is happy to take me to the. Library, shopping etc.
Of course my daughters help when they can but sometimes it really feels a big gap from Friday 'till the following ,Wednesday/Thursday when I go to the day centre.
So it can get lonely and tedious at times but I try to distract myself and get involved with something else