I am at my witt’s end. Without boring you with the details, which are honestly unbelievably confusing, I have had at least three, if not four changes to my dosages, one of which was a major error in the dosage I was prescribed. These multiple changes began on May 6th, and the last fortnight saw two more changes over two days, with a change of mind following on for one just hours later. My hospital doctor has written to my GP to facilitate the issuing of prescriptions to give me these new doses, but the communications are not arriving and the onus is being put on me to be a go-between between the hospital, the Parkinson’s nurse, and my GP. Understandably, my GP will not issue anything on my say so, but I’m being batted about like a human tennis ball between Djokovic and Federer at Roland Garros. I no longer know what I am supposed to be taking, how much, or when. It is giving me untold stress, and we all know what stress does to our symptoms. I came close to losing my temper with a less than helpful receptionist who asked me what did I expect her to do.
It’s just not good enough, the responsibility to sort this out should not be mine!!! I’ve reported it to various departments that handle complaints, but am really at a lost as to what to do next.
My Sympathy Artgeek … I agree that it is frustrating not to know what medication you should be on.
Why not write to the senior doctor at your GPs setting out your concerns.
Best wishes
Steve2
Hello Artgeek,
We are very sorry to hear that you are going through this. We definitely would suggest raising this further with your GP. In the meantime our helpline may be able to offer you some advice. Pop them a call on 0808 800 0303 and our friendly team are available to you.
All the best
Parkinson’s UK Moderation Team
thank you, Nickle. Although it was not clarified in my closing statement, the calls I have made reporting this to the various complaint handling departments, eg. PALS and similar, were instigated as a direct result of my contacting the Helpline for advice. I understand they are looking in to how I was prescribed the wrong dose of the wrong drug, why the letters are not arriving with my GP, and why I am the one who is doing most of the legwork to sort it out.
Definitely understand your feelings Artgeek and thank you for sharing them. Our helpline is also there for further support if you need it. We’d also like to use your words as feedback to help our campaigning for better healthcare for people with Parkinson’s. Would that be okay?
Parkinson’s UK Moderation Team
that is fine as long as you don’t use my real name. If you are interested, I am also having difficulties with a lack of suitable transport to hospital, GP and other health related appointments.
Vot is your name boy…
Don’t tell him pike …