Hi. My husband suffers really badly everymorning with what I think is akinesia.He has his stalevo tablet at 8am but cant drag himself out of bed until 11am. During that time he struggles to move, occasionally has jerky movements, is confused and can barely finish a sentence.
He is very depressed but gradually comes round a little after lunch. He has next tablet at 2pm and at 3 is falling asleep.
Covid is getting in the way of him being seen in person and the consultant doesn’t seem very interested.
He has been diagnosed for 2 years.
Does anyone else suffer like this?
Hi @Angela1
I would suggest that you contact your Parkinson’s nurse or ring our helpline on 0808 800 0303 as they can put you in touch with a specialist nurse so you can discuss medication.
I hope this helps
Regards
Sue - Moderation team
Sounds like he’s under medicated, I would speak to pd nurse or your consultant
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Hi, it’s a such hard work isn’t it!!! You try to stay well.
My husband is on Stalevo but his dosage is split into 5, 9am, 12, 3pm, 6pm and 9pm. This works much better than taking 3 tablets a day. Ask for a reduced dose and more often.
Hope this helps. H.