We thought our dad had Parkinsons but he had MSA. He died in the first lockdown alone due to covid. He was only 57.

For years we thought it was Parkinsons but chsngesmade it clear it wasnt. Watching him lose mobility was hard. I’m still unsure(aware doctors also) if it changes the mind. He acted really oddly towards the last week or two.

Just wondered if anyone else had experiences


I wanted to take a moment to both welcome you to the community as well as share my condolences on the loss of your dad. I’m glad you have reached out to the forum for support - that is exactly what we are here for, and I know our members will be here soon enough to share their experiences with you.

If you have questions about MSA, or simply need someone to talk to, you can call our helpline on 0808 800 0303. Our helpline is for everyone affected by Parkinson’s and all the different forms of Parkinsonism. Our advisers provide support to family and friends alike.

Best wishes,
Forum Moderation Team