Has anyone had any experience of Mucuna? I have read some very positive reviews.
What is it?
Mucuna is also known as the velvet bean, its reportedly increases dopamine naturally. I tried it for about 6 weeks didnt change anything but then again neither did sinemet, so probably could help certain individuals 
Do you have PD or Atypical PD. Any source of dopamine may not help you if you have something like PSP or MSA
Regards
Doug
Hi Doug, ive seen 3 seperate neurologists and parkinsons nurse. They have all said i have idiopathic bi lateral parkinsons disease. It seems none were willing to give me a datscan but the last neurologist i saw, i pushed him for a datscan, currently been waiting 3 months, probably be waiting another 3 years before i get one 
Hi Dazman
Not usual to have bilateral neuronal loss. For most people it is one sided - for me my right side. Do you have a symptom modifying reaction to any form of levadopa? It will be interesting what your DAT-scan shows and whether it supports the diagnosis you have been given. I have now had an initial DAT-scan and a review after 10 years. My neurologist at the National Hospital for Neurology and Neurosurgery is fantastic.
Regards
Doug
Hi Doug, my tremors are down my left side, started in the leg, with tightness,with what i can only describe as nerve like pain, going down back of leg to outside of foot and tremors in my left hand, arm and even left pectoral. They say there is stiffness in my right side to but i feel nothing.
I have tried sinemet, propananol, rotigotine patches, trihexyphenidyl and rasagiline, all have had no effect. Yes it will be interesting to see what DAT-Scan shows and i cant wait find out. I find the whole system pretty hopless to be honest and most the drugs they give you caused me more issues then when i was not on them. Im glad youve got a good neurologist. Where i am,its pot luck, see a different 1 when ever i go, so theres no way they can track youre symptoms, it would be great to see the same one, at least then, theres consistency.
Regards
Daz
Hi Dazman
Never forget that you can be treated for your PD at any hospital of your choice. You are not limited to your local hospital. I have travelled down from Lincolnshire and now Norwich to see my consultant at the National Hospital for Neurology and Neurosurgery, Queens Square, London. It is currently a two hour rail/tube journey to get there but it is a centre of excellence for PD (care and research) and I would not have my PD care at any other hospital.
Regards
Doug
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