![:cry: :cry:](/images/emoji/emoji_one/cry.png?v=3)
I have nothing to base this on except my own experiences with Dad.
In the beginning the PD worked slowly taking Dad's mobility after 6/7 years his was in a wheelchair and unable to drive or live on his own. He couldn't manage the house or his personal needs. He went into a care home.
I kept asking his PD Specialist and Nurse where this was going and how, and how long would it take. But there were no answers.
Then in the last 18 months, he was doubly incontinent and then PD started to take his mind.He transferred to a Nursing home. I watched a bright, highly intelligent man, loose the ability to watch the tv, listen to music or even feed himself. Now no one ever said that might happen!!
I understand it's good to be positive, but I never found support or any literature that really said how bad it could be. And my god it was bad. I can't even begin to explain. The photos of Dad look like a man from WW2 concentration camp. I feel the society does have a right to tell the worse situations too.
In the last year of his life he lost the ability to speak and was often detached from the real world.
WHAT WAS HIS LIFE? WHAT WAS THE QUALITY OF HIS LIFE? Was he suffering? Honestly, I don't know, he couldn't tell me. Would he liked to have lived like that ? Definitely not.
Watching someone you love slowly dying and not being able to help is the hardest thing I have ever had to do. There must be a better way.
I loved my Father with all my heart I always will. Noelle