Apologies - prematurely posted by my tremor, not by intention!
Let's try again...
I've been on the site for several months, but only really started to use it in the last week or so, since I got my date for DBS.
I was diagnosed late 2011, but have had symptoms going back to the early 1990's and probably beyond. My PD was very slow in progression until 2010 when it started to speed up - the mild tremor that had been with me for many years suddenly became stronger and has now progressed to a strong/violent tremor affecting all limbs. My neurologist (Robert Adam at the Norfolk & Norwich - now sadly gone to pastures new in Australia) referred me to the National Hospital for Neurology & Neurosurgery in London for DBS. I was assessed by the team at the end of September 2015, and recently received a provisional date for surgery - 19th April 2016.
Currently not taking any prescribed medication, but have trialled ropinerol (no positive effect, but caused itching and nausea), co-careldopa and pramipexol (no positive effect but caused heartburn, nausea, itching and a skin rash), trihexyphenidyl (no positive effect but caused complete lack of motivation which persists to this day) and Madopar dispersible (positive effect on tremor but caused heartburn, nausea and IBS so severe that I had to discontinue after 5 or 6 weeks).
I live in North Norfolk and do not currently work. In the past have worked in the hotel & catering industry, was an IT consultant for many years, and more recently have been renovating my cottage (still not finished, but will get there in the end).
Currently scouring the internet (including these fora) for information about DBS, particularly in relation to the team at the NHNN - my consultant is Mr L Zrinzo.