Living with Parkinson’s every day I count as a blessing, and I always challenge myself to make the most of it. I am beginning to understand my personal limits, which are set extremely high, because I, me, never make things easy for myself! I am a doer who will never let Parkinson’s beat me.
Every day I go over the same old questions – never getting the answers
How long will I be able to work for?
Will I be lucky enough to share my forever life with someone until the end?
What daily chores or working activities that normal healthy people take for granted, that I am now finding difficult, will I not be able to carry out, who do I ask for help?
Do I need to set a 5 year plan?
There are no definites associated with Parkinson’s so how do I plan?
What was their name again?
What was I doing next?
Who was I meant to be calling back?
How can I help all people with Parkinson’s?
How can I make a difference?
What were we all doing that follows a pattern, resulting in our diagnosis of Parkinson’s?
Who can help us?
Who will listen to us today?
I will continue to build relationships with decision takers, policy makers, influential people, listeners, people who care and want to help us all in the Parkinson’s Community – to have a better quality of life.
I’m on a life long mission promoting
Better life skills and a positive mental attitude
What works for me – I will share with others – it may help some people
Promoting the ability to work out your own limits
When to ask for help
Being able to cope, and develop strategies to deal with your anxiety – my worst symptom of living with Parkinson’s
Parkinson’s is so so complex and one cure will NOT work for everyone – so why not share your experiences of living with Parkinson’s to help others on our journey together?
I am not a lover of reading constant negativity, promoting positivity is the way forward for me and being heard. I cannot do it alone though, but I will give everything I can to make things better for us all.