My Story Since Parkinson's
Hi Vanksed, I've read your post with great interest as I too was knocked sideways when I was diagnosed with PD back in 2003. It took a while for me to come to terms with my situation, but with the help and support of the people around me I can honestly say that I now treat PD as little more than an unwanted travel companion. The most dramatic change in my attitude to the disease came about last year though when I decided to write a book about my life before, during and after my diagnosis. I had begun to notice a change in the way that friends and family were treating me. I needed to remind people that underneath the very visible signs that I have Parkinson's I am still the same person. 'A Life Worth Living' started in August 2012 and finished with a batch of 100 copies being printed and delivered to me on the 18th June 2013.
The tonic I received from writing my own book was absolutely immense, even now some 4 moths later I'm still feeling the 'buzz'. I've tried without success to get a publisher on board as I really feel that if more people that have a life changing condition read my book and are able to do something similar then they too would feel the benefits? If they're anything like me then by looking back at their lives would leave them with the desire to do more
I've added the two links so you can get a flavour of what the books about - Please remember its not a book about Parkinson's, its a book about Simon Ingram who has Parkinson's.
The freedom you get when sitting down at a keyboard is something that I find truly stimulating. This along with the overwhelming sense of achievement I received from completing my first book have encouraged me to start a follow up book and start a fictional book as well.
My second book 'Living By My Rules' is a follow up to 'ALWL' is intended to highlight more about how PD affects my daily life ... not too detailed though as I tend to focus on the positives.
My Third book 'Living with Demons' is a Sci-fy book about time travel
I'd really enjoy a chat, so please send me a message when you can.