My mum is in a very bad way. I am hoping some of you will be able to help by sharing your experience if you have lived through this with your own family.
Mum has Stage 5 Parkinsons. She has had Parkinsons since 2003. She is 80. A month ago, she was able to go out for dinner with us and sit with her young grandchildren. Things have declined dramatically in the last week or so. She was on antibiotics for a urine infection and is now bed-ridden, hallucinating, cannot feed herself etc.
I contacted mum’s Parkinsons nurse on Thursday who arranged an emergency care team to come x3 times a day. My dad is here as the main carer and has his own health issues to deal with. He is 82.
I have come back home (I live several hours away from my parents). I have two young children aged 4 and 6.
I spent yesterday crying for most of the day, sitting by my mum’s bed, playing her music, trying to give her an ice lolly, and soft food like the yoghurt squeezy that you give to kids. She is alternating between sleeping and hallucinating. I am trying to give her water.
I will be calling mum’s GP and the Parkinsons Nurse on Monday to try to assess where we are as can only assume we are close to the end. Trying to do small things to give comfort. Where do we even go from here? From experience, I don’t think hospital is the place for mum with patients shouting out throughout the night and her medication getting messed up. If these are her last days then I would rather she be at home. We clearly need round the clock 24 hour care.
Any advice on an emotional or practical level if you have lived though the same thing is much appreciated. Thank you