Neupro patches


#1

Has anyone experience of using Neupro patches, please? I should be starting them but am v nervous as the last DA I took gave me v low blood pressure 

thank you

samdog

 


#2

My experience with Neupro has been positive. I am now on the 4 mg patch and I find it helps control the symptoms. Has not stopped the tremor unfortunately. I had to go up gradually because at first I found it gave me nausea. It took me six months going from 1 mg upwards. I kept the half patches on with a plaster. I exercise a lot so I still find putting a plaster on the patch is helpful even though the 4 mg one sticks quite well.


#3

Thank you Roman. Could you tell me how long the nausea lasted and were you actually sick? I am on Madopar as well and wonder what would happen if I was sick. Sorry need to ask the doctor!

bw

samdog


#4

Apologies for the delay in replying but I was in hospital for three days and they didn't have WiFi. I felt a lot of nausea and dizziness for a couple of days when I tried to go from 2 mg to 4 mg. It stopped when I reduced the dose back to 2 mg. I stayed on two mg for a couple of months after that, then went up to three mg ( I halved the  6 mg patch) for almost three months and finally I am now on 4 mg without problems. My system seemed to need a lot of time to get adjusted before I could up the dose. I hope this is helpful. Bw. Roman


#5

Thanks for getting back, Roman. I have been prescribed 1 mg so maybe it will be ok. Who knows? Hate these side effects. Wonder how often Neupro is prescribed

 

hope you re ok

BW samdog

 

 

 


#6

Thank you. They put in two stents and I feel fine. On the PLM website there are 138 patients who report being on the Neupro patch versus five times as many for the other DA's. I guess it's due to costs. 1 mg is very much an entry level dose. My Neuro told me not to expect any benefits until I got to 4 mg. BW Roman


#7

Thanks again for that iinfo

bw samdog


#8

Sorry to gatecrash your post... I am on Neupro - have gone from 2 mg to 4 mg and tomorrow I'll start 6 mg after a terrible experience on ropinirole (the XL version wasn't absorbing; the instant release made me constantly sick). Happy to report I haven't been sick once since starting Neupro, only some v mild nausea and uncomfortable bloating. But that's probably because I'm keeping food down again finally!

The 6 mg patch looks big, so I'm not looking forward to that. Dread to think about the 8. It's worth the itchiness / discomfort taking them off, though, as I think I'm seeing a difference. I'm 30 years old and have been dx for 8 months now, and while I don't doubt that 'normal' is something I'll never feel again, I'm getting a bit of my old self back, finally. Well, until this bloomin' patch starts itching me, which serves as a regular reminder...

I'd love to hear from others who are on this.

Good luck,

E :)


#9

Hi yo 83

Thank you very much for sharing your experience of Neupro and I m really glad you re feeling a benefit. It would seem it s the least prescribed of the DA s , possibly due to cost.

I ve decided to delay using the patches for the time being as I m anxious about side effects.

all the very best to you

Samdog