I’m just wondering if neurologists send out reports these days. We’ve been waiting nine weeks for our last one. The reason I’d like to see it as I think the pharmacist at our surgery has his new prescription wrong. I did try to talk to her but couldn’t get past the receptionist! Its not desperate as its exactly the same as what he’s been on for years only instead of two tablets its one (cant think the neurologist would do that as he said he was going to higher the dose). I’ve tried his secretary but I think they must have changed staff again. Hopefully the report will arrive any day.
@Minty Here in North Essex in the past we would get a copy of the letter sent to the GP from who ever we had seen at the hospital. Now we have an app called Mychart which has all the letters and test results, I get an email to say new letter or new test results uploaded and ready to view. You could contact your area’s version of PALS ( Patient Advice and Liaison Service) who should arrange to get a copy of report to you
Johan
Hello Minty, Like Johan, I too always get a letter a few days after seeing the consultant or Parkinsons’s nurse with what we agreed which is a copy of the letter sent to my GP.
In your shoes I would contact your consultant’s secretary by email asking for confirmation of the new prescription. You shoud get a reply to the email a copy of which you can show the pharmacist or leave a copy for the pharmacist if you still can’t get past the receptionidt - he/she doesn’t need to know your business unless you choose to say. In fact I would consider making a complaint - a receptionist may be something of a gatekeeper but he/she should not stop you getting the information you need nor does he/she have an absolute right to know your business with whoever.
Good Luck
Tot
Many thanks for the replies.
We’re learning all the time how to navigate this condition aren’t we.
I think what I’ve taken from this is:
You have to have the NHS app or on line system ( our neurologist doesn’t send letters anymore so we had no idea or the change of medication)
We had to wait 18 months for a neurology appointment and it was ten minutes long. I am going to insist I fully understand the changes in medication before we leave.
Don’t cancel any current medication as when a new prescription was issued it didn’t have the old meds in there so I presumed we just had to take the ones prescribed not with the old ones (hope that makes sense!)
Also as Tot says don’t let receptionist block you speaking to people, they don’t understand this condition.
Onward and upwards!
Minty Something else just thought of is the online system GP uses, on that system I can access my records and email the admin team direct avoiding the receptionist , order my meds and see a record of all meds issued to me
Johan
Good point Johanmb, I too can do that on the online system at my GP surgery, I didn’t think of that but you are quite right it could solve the problem of the over zealous receptionist
Tot