new boy

Living with Parkinson's Carers, friends and family
1

hello I am in my 70s and caring for my partner joanne who has the desease, she has had it since 2019, lately she is getting slightly worse in respect of movement and always feeling as if she is going to die, as a carer I feel helpless is there any tips you can give to help me calm her down and myself as I get frustrated by no knowing what to do.

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Hi pcmb,

Welcome to the forum, thank you so much for sharing.

We’re so sorry to hear you are going through this, we know how hard it can be. We’re sure the lovely community here will share their tips with you soon but in the meantime please do give our helpline a call on 0808 800 0303. Our team are really helpful and always here to chat about anything you need and offer support.

We hope this helps, if there is anything else we can help with please do get in touch.

All the best,
The Parkinson’s UK Moderation Team :blue_heart:

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Hi pcmb,

You haven’t mentioned how old your partner is.
I would presume round about your age.
However let me try to help.
I am 71 and was diagnosed in late 2020.
Luckily mine has progressed very slowly which I really put down to the fact that I exercise at least 3-4 times a week.
Recently it has started to get slightly worse but that is to be expected.
I am not quite sure why she feels that she is going to die.
Is it because she actually wants to “end it all” or she is just incredibly depressed.
The fact that it has also progressed so slowly and is now getting slightly worse does not mean at all that it will accelerate.
Does she exercise at all?

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Hello and welcome to the right place for lots of good advice. My husband has had pd since 2016. When his anxiety levels rise its really hard to get him calm these days. But it’s almost always when the dopamine levels drop that it gets bad. I do my best to reassure him and explain he will feel better very soon, I do need to walk away from it sometimes as well and just calm myself down. I’m sure many people will give you advice on here, where those who care and those who live with the symptoms share their experiences.

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