My wife was diagnosed with PD last Wednesday. Happy New Year to us!
This came as a shock to us as she was only going to get some tests so that our GP could rule PD out.
My wife is 54 and I am 55. We have two boys aged 21 and 14; we haven’t told them yet.
My wife’s symptoms are I think relatively mild at this stage. Some hand tremors and some anxiety/OCD. It was the OCD which she originally went to the GP for. She walks a little slowly and since the diagnosis we have realised that her handwriting has deteriorated over the last couple of years. she now has medication (levodopa) which she started on Friday.
Meantime I have been doing a crash course in PD and it seems that its an entirely unpredictable condition and we have no idea of how and how quickly my wife’s condition might deteriorate. that makes me wonder about the length of time that we might have together whilst the quality of her and our lives are not so bad. Fortunately, I have been in a well paid job for a few years and we have some savings and pension. I wasn’t planning to retire for another five years or so but who knows what our lives will be like then. I largely enjoy what I do at work but I’m seriously thinking about reducing my hours and salary of course so that I can make sure my wife is looked after and we make the most of our time together whether that is 5 years or 25 years whilst the PD takes its course.
I’m conscious thought that this might be a bit of an overreaction given the shock we have suffered this week.
My brain is spinning with all this and I feel that I need to make a decision on this so that at least I have done something positive!
any thoughts, positive or negative, would be really welcome.