New carer


#1

Hi
My names shirley my husband was diagnosed in October 12 days before his 50th birthday, today we seen our Parkinson’s nurse for the 1st , think we’ve been in denial for the past few months but today it hit us.
My husband (Rob) is in the very early stages and is still working.
I’ve joined the forum for help and advice if we need it ,please be gentle with us lol


#2

Hi Shirleym,

I’m very sorry to hear about your husband’s diagnosis. This must be a very difficult time for you both.

Please take a look at our website, where you can find lots of information and advice for the newly diagnosed: https://www.parkinsons.org.uk/information-and-support/newly-diagnosed-parkinsons

You’ll also find plenty of useful tip for those caring for a partner or family member with Parkinson’s: https://www.parkinsons.org.uk/information-and-support/caring-someone-parkinsons

If you ever need help or support on any Parkinson’s-related subject, you can always give our Helpline a try. You can reach them via email at [email protected], or call FREE on 0808 800 0303. They’re available on Monday-Friday from 9am-7pm, and on Saturdays from 10am-2pm.

I hope this helps.

Best wishes,

Owen,
Moderation Team.


#3

Hello there Shirley
My husband was diagnosed in Feb '18 at the age of 52 and I can honestly say that we felt that our world had come crashing down. We were in total shock and it took us a while to get our heads around it and learn to carry on living.
He also developed another condition soon after this diagnosis and so our lives drastically changed.
He’s still working too and I just wanted to let you know that the medication, physio and exercise (from a fabulous Personal Trainer) has made a HUGE difference. He’s now stronger than he’s ever been, his tremor has settled down, his handwriting has come back and we’re both feeling more positive about the future.
As you’ll soon learn everyone is affected differently but with the right help / support you can continue to live a ‘normal’ life. :heart_eyes:


#4

Hi
Thank you for this , as I do feel that our plans we had will now have to change , we are struggling to come to terms with everything , but from reading the things on this forum , I feel there is a lot of help about .


#5

Hello again Shirleym
Please don’t struggle on without getting the right support. The Parkinson’s UK helpline have been invaluable to us. Also, they have local representatives who have a wealth of local knowledge.
Try to build up a relationship with the Neuro team (Specialist, Physio, Nurse and Secretary). They have also been a lifeline to us.
Last night we watched a video of my Hubby taken 6 months ago by his Personal Trainer. He was unrecogniseable. Looking at just how far he has come is extremely reassuring and gives us both hope for the future.
If I could turn back the clock, the one thing I’d do differently is get him some sort of talking therapy much sooner. And ideally I’d have got some for myself too. :heart: