I was diagnosed with PD 1 month ago and am devastated.
The neurologist diagnosed it and left me with the PD nurses who gave me booklets.
Saw my own doctor yesterday as neurologist had asked her to talk to me,
She had referred me to neurologist but was equally shocked at diagnosis.
I am in my early 60s and was made redundant nearly 3 years ago and was looking forward to travelling and taking up new hobbies.
However 1 month after I finished work dad had a fall and never walked again. So with the help of a sister helped care for dad as mam ‘was just lost .
Dad was diagnosed with Parkinson’s and we nursed him through the final stages of Parkinson’s and it’s consequences until he died a year gone February . It was horrific and the impact on mam is that she has blocked it all out and has now been diagnosed with Alzheimer’s.
So sister and myself are helping care for her fortunately she is still mobile and enjoys her time with us.
I have shared my diagnosis with family and close friends but not with mam as she associates PD with dementia after what happened to dad.
So I know it’s early days . I have tremors in left hand and leg.
My left foot isn’t working properly and suffer severe neck back and leg pain .
I am loathe to try the meds because of the side effects .
I live on my own and am fiercely independent and fear for my future. I certainly do not want my family to have to care for me the way we did for dad even though I would never regret it. Dad had a wicked sense of humour and we often were crying through our tears.
So sorry for this long. Story I am sure that as I get used to the diagnosis I will find a way to beat it.