Hi 
my husband was diagnosed with Parkinson’s 12 days ago and we’re trying to get our head around all the information so any help of what to do and where to go from here would be extremely appreciated 🫶🏼
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I am one year after diagnosis.
I think the most practical thing I can do is to increase my activity. Mostly, i Do gardening and make a point of lifting my feet when walking.
I am getting good sleep, which for me is 7 or 8 hours.
My memory loss is quite severe, but I don’t fight it. Memories can not be forced. I tell people that I can’t remember their names.
I do not have any PD drugs yet.
Getting relevant appointments is difficult and as yet I do not have a PD nurse.
I have purchased a new TV with all the fancy features. But I can’t work out how to use it!
I like to remember that it is probably the least evil illness.
I wish there was a local PD club, but there isn’t. Maybe I can start one.
Sooty
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Hello Loza, thank you for reaching out to the forum.
We understand it can be a lot of information to take in, both for you and your husband, following his recent diagnosis.
We hope others will share their experiences with you, but we wanted to let you know that we’re here if you need us.
After a recent diagnosis with Parkinson’s it can be difficult to work out what you need to do first. We’ve created a practical to-do list to help get you get started.
We also know it can be hard coming to terms with the diagnosis as a supporter. We’re here to help you too.
Our helpline is also available if you’d like to speak to someone. Our trained advisors can put you in touch with a Parkinson’s nurse. It’s free and totally confidential: 0808 800 0303
Take care, The Parkinson’s UK Moderation Team 
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Welcome to the PD club foxes,
I find information from YouTube and an AI resource parkibot.
Hi Loza59 - Just wanted to say hello. Yes it is a bit of a ‘mine field’ isn’t it! I’m just about to go onto Levadopa. I’ve had PD for some years now but didn’t get a diagnosis until a couple of years ago. My fingers used to shake at work but then they’d stop again so I never bothered getting it checked out. I’ve found one of the best forms of help for both your mind and body is exercise. I go for a walk every day and do some more gentle stretching exercise in the house. If I find my energy has run out, I take a break. Listen to your body. I hope that’s helpful. Just remember your not alone and don’t try to carry on as though nothing’s wrong - if you need a bit of help, ask for it!
Medication like levodopa usually helps, but the doctor will decide what’s best. Start physical therapy and regular exercise to keep mobility.
Good evening Loza … Welcome to our World. I am 71 and was diagnosed in June 2023 with Atypical Parkinson’s following some mild Parkinson’s symptoms and what was thought at the time to be a positive datscan. I have had mild Parkinson’s symptoms for quite a few years before diagnosis.
I did try two dopamine replacement drugs that did not work before being put on
Co-careldopa which does work.
My neurologist took me off all Parkinson’s drugs for two months recently as I was having fairly severe sleep issues probably caused by the Parkinson’s drugs. Now I am back on these drugs.
You don’t give us much information … How old is your husband? What are his
symptoms ? Are they troublesome ?
If the Parkinson’s symptoms are mild I would consider waiting before going onto medication. The drugs we take only remain effective for a period of time before the medication is increased or added to.
Parkinson’s drugs control the symptoms, they do not cure us. There is no cure for Parkinson’s.
Parkinson’s drugs can come with side effects as they did with me. Insomnia, nightmares, Restless Leg Syndrome and fatigue as I am not getting a good sleep.
I also have other health issues which complicates treatment and a diagnosis.
Any questions please ask.
Best wishes.
Steve2
Hia Loza, you have found the forum and am sure you will find a whole range of information. You have already had some tips and echo @SC reply about trying to maintain a level of activity and listening to your body. Unsure if Parkinson UK still run the First Steps Programme for newly diagnosed, both your and your husband could have a look at it? I’m confident you would get a lot from it. I’ve posted the link below.
Take care both 