I'm a 37 year old Mum of 3 who works full time in London.
For about 8 months I've been experiencing progressively worsening tremors in my hand, arm and leg, cogwheel rigidity in my arm and motor difficulties, which has affected my writing and typing. I was referred to a neurologist who after performing a few manouvers sent me for bloods, an MRI and then a DATscan.
I met with him for the results last Friday and he explained that whilst the copper in my blood and MRI were normal, the DATscan showed a reduced uptake of dopermine on the left hand side of my brain (presumably accounting for my right handed symtoms)...
He has started me on a Maldopa regime and has sent me for a slit lamp (?) eye test and 24 hr urine testing to rule out Wilsons syndrome (which he thinks unlikely as the bloods were normal).
I've been reading a little about Parkinsons and whilst there is so much information out there, I'm struggling to make sense of some of it and I'm hoping you may be able to help...
1: Is a DATscan conclusive of Parkinsons or Wilsons?
2: The consultant mentioned genetic testing (7 genes in total), how might this affect my treatment?
3: How long does it take for the Maldopa take to work (I'm on 62.5mg x 3 a day, with a review in Jan)?
4: What is the outlook for EOPD? Do things degenerate quickly/slowly? I've read conflicting reports...
5: Whats likely to happen now?!
I'm sure my Consultant gave me some answers to these questions but I was in shock at the time (not good for my tremor!) and not really taking anything he said in.
If anyone has any good advice/thoughts or has been through a similar experience I'd love to hear from them.