I am new to this forum.
My husband was diagnosed with PD five months ago.
And I’m new to the UK.
We don’t have a support system. It’s just the three of us here. No family, no close friends and I’m scrambling to meet People so we don’t end up being alone in all of this.
He has gotten involved with a few things that Parkinson’s UK has on offer for those who have PD. But I can’t find any support for us.
We’re in our 60s and because of my own health issues, I became the wife I never wanted to be. He works really hard, and I have different abilities, so I stayed home and took care of him so he wouldn’t be stressed, and I pretty much forgot about myself.
Now I’m in a new country that is not familiar, and I need to rebuild and re-create my life so I can be here to help him, but also so I can live a full life myself.
I keep going in and out of panic and tears right now. I’m trying to be very positive and he’s doing relatively well. But the apathy thing really gets to me because I see him changing with his face and his attitude. I keep asking him if he loves me. His words tell me he does, but his face isn’t the same. I just want my husband back.
So I came here hoping to get some support and maybe have a place for me instead of feeling so alone.
Hi @Angel7 thank you for reaching out to the forum. That sounds like such a tough situation. We’re sorry to hear about your husband’s diagnosis and that you’re feeling so alone.
No one should have to deal with what you’re feeling on your own. Our free and confidential helpline is here for anyone affected by Parkinson’s. They can offer help, support and advice, as well as look at what might be available to you locally on: 0808 800 0303. We are here for you
you mention that your husband doesnt look like he did. parkinsons tends to cause a mask like unexpressive face. this can appear as though not interested or depressed .
listen to what he says and place less emphasis on how he looks
Angel, you have my sympathy. I can only tell you my experience.
Firstly please get the amount of medications right. Taking the right dose is very important - I improved dramatically when I got the right dose.
Do not reduce the dose for fear of long term “getting used to it” - my consultant told me there is no benefit to reducing dose.
Many years ago I moved abroad with my wife who has MS. One of thee things which eased the stress was it took time for my wife to find friends - in the American Womans Club of Geneva.
So it takes time.
On your husbands side, I would suggest the following:
I am in a Parkinsons choir in London. Keeping the voice strong is important.
I joined a Tai Chi class. This exercise has been proven to aid Parkinsons. Also means I have made a good friend locally who has been very supportive recerntly.
Lastly, I have some extreme stress myself about building works in our apartment.
I have reached out to family and friends for moral and practical support.
So you are doing the right thing by telling us your problems.
Hi, have you looked for carer support groups in your area? There should be some support for carers.If you can’t find the info online ask at your GP practise or local Citizens Advice Bureau
Angel, could you give a general idea of the area you are living in?
I think you should find a local group for yourself - something like a knotting or craft circle.
If you are over 50 and in the South East , Silverfit organise sessions such as Nordic walking
