Good afternoon everyone
I have been on the forum before, I must admit I tend to dip in and out, I dip in if I am honest when I'm on a bit of a downer but nice to say this time I am ok just thought I would look over the new set up and it seems pretty good thus far.
Who am I , well I am 53 diagnosed with PD in 2006 which started as a tremor in my right little finger and cramping in my hand when writing at work. Although for a good few years prior to this I had fatigue ++++ I have described it before like hitting a brick wall but I have always been busy so never took a great deal of notice I did visit my GP when it was particularly bad and I do wonder just how many blood tests I actually had prior to 2006 for blood count and thyroid and always came back as normal; which they would.
Anyway I get referred to Neurologist, I go alone (initially) because I didnt think any specific diagnosis would be given at a first consultation; how wrong was I, in fact my sister came with me.....and I was glad she did. Shell shocked comes to mind as to how I felt but do you know the worst he said was that I displayed the mask like expression quite common for PD; that has stuck with me from day one. Why did that upset me more.. I really dont know but I was determined from that day I would smile all the day long from that day on.
So here we are 7 years down the line and if I say so myself I think I'm doing pretty damn good....please never underestimate the progress of this condition I know it is doing so but it does not stop me from doing what I want to where I want to and how I want, but it can make me miserable it can make me cry it can make me sad for my family it frustrates me it can put me in a dark place but .........its not the b all and end all. It is hard going and I have noticed lots of changes in myself how much slower I am how much longer things take me how I have to pace and plan (people that know me would disagree with that statement) but I know I do because I know how much I used to do.
I went to my first local support group the other evening and if for no other reason than to support the group I will keep going because in time, a long time I hope, I may need their support and I hope in going I can support the group as a whole as well as others individually.
I am a great believer in positive thought and it is hard to be so every minute of every day but on the whole that is my coping mechanism, so looking back this is quite a long post but I look forward to reading posts and dipping in and out as I did before but hopefully more in this time.
Take care everyone and keep smiling x