Hi
I was diagnosed with Parkinsons 3 weeks ago, and I’m still trying to get my head round this.
I am 60yrs old and determined to learn as much as I can, to deal with it head on. I know exercise is important - I currently do yoga and burlesque dance but aim to add some walking to this. I’ve enrolled in the Parkinson’s Walk in Glasgow to start off. Although in early stages and not medicated at the moment, should I request physio to stave off movement problems just now?
Does anyone have any advice or tips about the disease generally?
Hi and welcome to our forum, @Weegam. Everyone here is very friendly and supportive and have sat where you are at one time. I’m sure they’ll be along to say hi soon.
It really is a lot to get your head around all the ins and outs, ups and downs of Parkinson’s and, of course, your journey will be unique to you. However, our website has an incredible amount of information on just about anything you need or want to know. I’d encourage you to explore the pages at your leisure and use the search bar. I’d start on the home page at https://www.parkinsons.org.uk/ and see what you can find. We’re all here to add personal experiences and stories along the way. If you have specific concerns you’d like some support for, please remember our helpline is there to listen and offer advice on 0808 800 0303.
Exercise is definitely very important and it sounds like you’ve found the perfect ones for you. The walks will add some variety and a chance to meet others with Parkinson’s and their friends and family. Thanks so much for supporting us by walking in Glasgow. As for physio, talk to your specialist or Parkinson’s nurse about what help they can offer to keep you mobile.
We’re looking forward to hearing much more from you in the future.
Good morning Weegam & welcome to the group. I’m 70 & had a positive Datscan & was diagnosed with Atypical Parkinson’s about 9 months ago. There are different types of Parkinson’s. Parkinson’s affects us all differently. There is no cure for Parkinson’s but there are pills to treat our symptoms. With this there is a lot of trial & error with different Parkinson’s medication & dosage.
Things happen slowly with Parkinson’s.
I went to the Conquest Hospital yesterday to start a 6 week Neurological Physiotherapy course for Parkinson’s. There were 2 of us doing the hour long course
with 3 trainers / helpers…
The exercises were very basic & you can google good exercises for Parkinson’s. I would also go out to Youtube & watch the Parkinson’s exercise videos there.
Welcome i do nordic walking on a weekly basis am trying to do more hopefully with slring coming i intend to go to museums and carry on going to see my rugby team am now taking an extra tablet amatandine with co careldopa so heres hoping things improve
Hi Weegam
I was diagnosed 18 months ago it has taken me this long to get my head round it, I am 72 but have always been active person, now I am in pain most of the time can’t sleep and my head is allover the place sometimes, but how positive you are deal with it head on that’s the best way it will change your life but you needn’t let it control your life, take your medicine when you should have a positive mind, I am now training for my local 10k run yes it is hard but feel good that i am doing this, as it will say on my tee shirt on the day of the run I HAVE PARKINSONS but it don’t have me
Good luck
