Hi. I’m new to this forum and need your thoughts on our situation.
My dad has Parkinsons with PDD (Parkinsons Disease Dementia) and is going downhill quite quickly. We got a live-in carer to move in 5 weeks ago, and he has been worse since she arrived. Very vacant and hardly speaking. Some days are better than others. She is an amazing carer and gets him walking and drinking water as much as possible.
He started an increased dosage of Dementia drug - Galantamine - just before she arrived. Now we are trying to work out, is he going downhill because the dosage is too high and he has become zombie-like, or has he 'given up" now he has full time care and doesn’t need to look after himself anymore.
Does anyone have any experience of this? We thought he would have more vitality with her there, not less…
Hi SJ333,
Welcome to our community forum. We’re sorry to hear your dad is facing these challenges. While our forum members are sure to have experience of this and wisdom to offer, we wanted to make sure you’re aware of our free and confidential helpline on 0808 800 0303. As a supplement to your medical team, they have a wealth of resources to offer, including assistance local to you and your family. We also recommend having a search on www.Parkinsons.org.uk for relevant terms, as this will lead you to archived forum discussions on the topic.
We hope this helps, and with our warmest welcome,
Jason
Forum Moderator