New Member Checking In

Hi All,

I don’t suppose my story is much different to most people here, but at the risk of boring everyone, here goes…

I was diagnosed with PD in Sept '19 at the age of 61, after having been referred to a neurologist by my GP when I was suffering with very stiff leg muscles. At the time, I could barely walk 200 yards before my legs would begin to painfully seize up. Following the diagnosis, I was prescribed Sinamet+, which has done a lot to ease my symptoms. I can now manage to walk a mile or so at a good pace.

After the diagnosis and taking into account the tests the neurologist carried out, I now realise that other symptoms I was experiencing were likely due to PD. These included some difficulty in hand-writing and slight stiffness in arm muscles, though these weren’t as bad as I eventually got in the legs. Thinking about them, I believe my PD had been present for at least 2 years prior to diagnosis.

I had tended to put these symptoms down to the stress I was suffering at the time, due to caring for elderly parents, especially my father, who had been bed-ridden and suffering from dementia for some years, although he has now passed away, and carrying on with a full-time job as well. I suppose I should have seen a doctor earlier, but PD is not something you really think could affect you - I mean, isn’t it one of those conditions some other poor bugger gets, not me?

So over the last few years with all the above going on, I got very little exercise, so the mile-walks I mentioned above are a mini-triumph for me now. I’m trying to build them up as time goes on and I get a little fitter.

Luckily, the firm I work for have been very supportive, both in respect of when I’ve needed time off to support my parents, and after my diagnosis. I have discussed with them the possibilities of going part-time or taking early retirement. I am still pondering these options, obviously finances being a significant factor, but the same time I’d like to be able to have more time to myself to enjoy life - like being able to get out fishing more often or build that model railway I’ve always wanted to - before things deteriorate too much. A difficult choice ahead I think, and I can’t really get my head around it at the moment.

Oh well, that’s enough from me for now. Take care everyone.

Pete.

Welcome to the Forum Pete,

Having a supportive network is so important, you have that here!

Take care of yourself

Annie

Hi pete
Welcome ime 59 diagnosed with pd xmas 2019 i work full time ime out of condition at moment but looking to join gym soon i only have left hand arm tremor but more embarrassing than trouble sorry to hear you have pd but hey not wnd of the world i dont need meds as of yet but we’ve all got our own journey its great your walking so far keep it up but dont overdo things .
All the best, cal1960

Hello Pete just to say weelcome and instinct says you’ll be ok, I think you have the right attitude and positive outlook which I strongly believe makes a difference and you are addressing the issue head on with your employers etc. Deciding what to do about work and when is a huge deal and a difficult decision make sure you get all the information you need to make the decision that is right for you. There is a lot of info on the Parkinson’s UK site but I would encourage you to ring the helpline and talk to someone. They are very knowledgeable and may be able to help clarify your thinking. Good luck and let us know how you get on