Hi all.... i found this group and joined today.. and would like to post my story, please help !!
my husband was diagnosed a month ago with idiopathic parkinsons disease, and we too have a holiday coming up in may. To my utter surprise my husband has taken the diagnosis very very well.... but he has no idea what the bigger picture contains, which is good news..... however.. its me thats fallen apart.... i have been with my husband 36 years and thought i knew him inside out.. that was until 3 years ago, when he totally changed.. was non empathic, very apathetic, was disrespectful and non grateful for all i was doing to help him.... yes it caused a major rift, he was unable to see things the way i did, and was unable to feel apologetic for his wrong doings..... i of course was devastated and so so upset...... it was like living with a total stranger, he became someone i didnt recognise.. and of course for me.... the hurt and upset continued as i watched him self destruct and take everything with him along the way. I visited his doc ( who is my doc) and discussed these aspects with him, her agreed it came across as selfish and suggested counselling.. i got my husband to visit the doc and he suggested he take antidepressants, which my husband refused... since then life carried on.. i tried so hard to put up and shut up.. but the hurt and upset remained.... the hurt he never saw or acknowledged.... Then the head tremors began, the bradykinesia.... does anyone here know if apathy and this form of behaviour ( non motor) can be the initial symptoms of PD??? i can get no conclusive answers from the medics, and the not knowing is tearing me apart.
What will i do??? i will go and enjoy my holiday.... after my husbands diagnosis he went into town and treated me to a two week holiday to aruba...an island i always craved to visit, as a treat, he said it was his way of making amends for the way he had treated me, which was so so nice..... yet promises to change dont materialise and life continues.... i think i just have to accept that this is pd and not my husband, and maybe in time with support i can adapt and continue to take care of him..... can anyone shed any light on this??? i so feel for all sufferers i really do..... and now i also see the other flip of the coin.... noit only does pd affect the sufferer.... it affects everyone around them... wives included xx