Hi! I’m Anne, and I am my husband’s carer. He was diagnosed with Parkinson’s two and a half years ago. He’s had some ups and downs, but isn’t too bad at the moment. He doesn’t have tremors. He has bradykinesia. Also high anxieties.
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All the best
Parkinson’s UK Moderation Team
Hi Anne,
Have a look at keto diet or intermittent fasting for PD .
Also have a look at red light therapy aka photobiomoduation for PD , .
The above therapies can be found on YouTube.
Happy researching.
Hi
I hope that your husband’s Neurologist and the rest of his care team are aware of all his symptoms and are treating them appropriately.
My view would be to take care with “YouTube” cures. They are rarely investigated and assessed by proper clinical research.
Take care
Doug
Hi Douglas,
Just to clarify the therapies as you can see from the videos are not cures but are therapies used along side conventional PD treatments to help improve symptoms.
Hope this helps.
Best of luck
I am aware of that. My warning still stands that people may end up shelling out money for things that do not work or are no better than placebo. Even therapies should be subject to peer reviewed research to lessen the risk of failure.
I looked for the peer reviewed research on the effects on PD of the therapies you mentioned and could not find any. I did find this that concluded that more research was needed. https://www.stephypublishers.com/sojcem/pdf/SOJCEM.MS.ID.000514.pdf
Regards
Doug
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Hi Douglas,
I believe Dr Mathew Phillips did a study on the keto diet and split the group one using the Mediterranean diet and the other Keto diet. Both groups improved but those patients on the keto diet dramatically improved. Since then there have been three more papers.
The red light therapy has been in use for neurological conditions and has also had extensive research.
I know they use DBS for PD which is invasive and I like to think that red light therapy is stimulating the brain non invasively.
Running the brain on ketones instead of sugars helps people with neurological conditions.
I believe there was a guy called William Curtis who improved his PD by keto by 80%.
There are videos of his successful use of keto documented by his neurologist.
I find these therapies exciting and well worth investigating .
There is a doctor in Australia who uses red light aka photobiomoduation and was so impressed she had a electronic engineer make devices for her patients.
My advice to you Douglas would be to have a look at these therapies and judge for yourself.
Regards
Hi Lar
From the conclusion of Dr Phillips paper:
“ It is possible that a ketogenic diet could play a complementary role alongside l-dopa in the treatment of PD, but due to the preliminary nature of our findings, larger and longer randomized, controlled studies are needed before this can be stated with confidence.
With red light therapy please see Turning On Lights to Stop Neurodegeneration: The Potential of Near Infrared Light Therapy in Alzheimer's and Parkinson's Disease - PMC
If anyone is interested in treatments such as diet or light, perhaps the way forward is to find a clinical trial and be part of that research process.
Regards
Doug
Thanks Douglas I am always willing to try new approaches in my therapy . The peer reviewed mantra has been shown to be corrupted and many journals bought and biased from what I can see.
I believe the vaccine group in the US has been removed from office because it was believed they were rubber stamping jabs .
I appreciate your more cautious than me we are all different which is not a bad thing.
All us parkies are trying our best to deal with a difficult disease.
Best of luck waiting for peer review PD solutions it takes years I think not much has changed in the last 60 years in PD solutions.
I can’t wait that long already gone thru 80 years.
If you discover any solutions let me know.
Regards
Lar
Hi Lar
I am involved with clinical research and I have seen no evidence that peer review has been discredited.
That committee has been disbanded as part of Trump’s changes. Its disbanding is totally in keeping with US anti-vaxxers in high places. Fortunately we in the UK are not totally destroying research.
I worry that people with little money may be lured into therapies that do nothing for them other than use their precious financial resources.
You, of course, must embark on whatever novel purported treatments you think appropriate.
Take care and have a long life.
Doug
Hi Douglas,
I appreciate your views and can see we have different opinions.
The mRNA synthetic gene based therapy as far as I can see has bio distribution that goes all around the body including the brain we were told the jab contents stayed in the arm.
The heart problems associated with these jabs are not mild and I believe are one of the reasons for the increases in excess deaths.
I can see top oncologists are now seeing an increase in cancers some described as turbo cancers ie high development which are being detected at stage 4.
Cardiologist are seeing a rise in heart problems which are associated with the jab.
The study on sudden deaths after autopsies found that 74% were due to the jab.
Birth rates since the jab have fallen across the jabbed world and the spike protein has been found in the iveries and the sperm which they say is responsible due to systemic distribution of the synthetic mRNA jab. Because the protein in the jab is synthetic the body can’t easily break it down ie it hangs around for a long time and is still being detected in patients.
As far as I can understand the the jab programs the body to make the spike protein but if that’s the case where is the off switch ; as I say some people are still producing the spike protein ?
Another thing which I don’t understand is if the spike protein is the most dangerous part of the virus why are they programming the body to make it.?
The synthetic mRNA jab they rolled out was manufactured using a different process as to the one used on the main trial because they needed to produce on mass production.
As I understand it this process came with a lot of contamination mRNA from the vats and the quality control was poor and due to these contaminants the body could produce the wrong code due to reverse transcription or a by frame shifting. These processes I believe could get into the genes and cause unexpected responses or diseases.
Why has the jab got SV40 in it ? This can cause cancer I believe?
There have been studies that have shown the more jabs you have the less immunity the person has something to do with IG4 ?
I am thinking of the Cleveland study.
This jabbing has been associated with autoimmune conditions ie a condition termed vax AIDs ,
I noticed that the undertakers are finding white fiber clots in bodies when they come to the embalming process which they have never seen before the jab rollout.
I believe there was a study done on the jabs that indicated roughly I think 30% spread of lots that were causing most of the more serious adverse events. The compared lot numbers to work out which lots were dangerous.
As anecdotal comment I live in a small village and have observed three cancers , two strokes , one heart condition I suspect the jab but obviously can’t prove it was.
In my family I have observed colon cancer , heart problems and micro clotting in the lungs after taking the jab again I prove it was the jab.
I believe if you have had the jab and are not having any problems you are probably ok but my advice would be not to have any more of these experimental gene based synthetic jabs .
As always Douglas it good to share information that we believe to be true ,
I am no scientist but can observe and draw a picture of what I am seeing and what is being discussed by leading doctors and scientists whose voices are being censored.
Regards
Lar
UK research has not produced the “results” that you believe are as a result of Covid vaccinations. But then the USA is notorious for conspiracy theories and doctors finding there is more money in peddling anti-vax pseudo information.
It is strange that you advocate therapies that have, even by their own scientists, have not had sufficient research and yet doggedly believe all this anti-vax rubbish.
Perhaps, as you are not a scientist, your beliefs are just that- “your beliefs” based on what you read that has not been fully researched. In the US you now have an increase of measles cases with associated deaths when, through vaccination, the US had effectively been measles free. The reason - anti-vaxxers.
I did wonder why you kept jumping in when people have been newly diagnosed. Now it is clear.
As a person with PD, Type 2 diabetes and leukaemia (all diagnosed pre Covid) I am pleased to now have had 14 mRNA vaccinations with no complications and no Covid.
Thanks Douglas,
Appreciate your views as always ,
For your information I am not a antivaxer as I have been jabbed in the Forces and served in the middle east , far east and Europe.
The term antivaxer is thrown around to invalidate the argument.
I am however anti experimental synthetic gene based therapy that we were told was a vaccine.
Thanks again for your views, we can agree to disagree on this topic and hopefully move on.
Regards for now
Lar
Lar
So many of your comments are prefaced with “I believe” and yet you are not a scientist. Even some of your own scientists have said more research is needed and you choose to ignore that.
That you have had vaccinations when they have been mandated does not speak to your current status. That you have been in the US Forces says nothing to the topic under discussion. That service gives you no scientific credence.
I have nothing further to say on you and your views. Other readers will come to their own views.
As to my Parkinson’s, I am happy to listen to my neurologist at the National Hospital for Neurology and Neurosurgery - a centre of excellence for treatment and research.
Doug
Thanks Douglas,
As always the choice of jabbing is a personal one and I am sorry for your health conditions and a risk benefit analysis after due diligence is always required b4 any decisions you make .
I am not offering medical advice the choice is up to the individual after doing some research.
Best wishes to you.
Lar