I know Max Little (who is leading this research) - he is based at Aston University in the UK.
So, do I want my name, email, address broadcast to the world - no. And I have to trust Parkinson's UK to keep that data secret. Equally I have to trust Patients Like Me not to share this data. (Being based in the US, clearly the most litigious country in the world, there are undoubtedly hordes of US lawyers waiting to sue them if they do let private data out!.)
Do I care if you know that I am male, 63 years old, have Parkinson's, take Sinemet and Mirapexin CR which help considerably with my motor problems but that I suffer from insomnia, constipation, weak bladder and loss of concentration (maybe from the lack of sleep) - not really. And, if I share this information on this forum, maybe someone will help me find some solutions to my issues.
So I would encourage you to look again at the Patients Like Me site, which I think is very clear and open about their policies. Put in the minimum data on your profile and help Max in his research because it may in the future help PWps like us.
Here are some links to PLM's policies: