New research study on carers' experiences of ICBs


#1
Hi everyone,

I am a researcher from City University London and I would like to introduce our new research study.

The aim of the study is to explore the carer’s experience of living with someone with Parkinson’s disease (Pd) who exhibits impulsive or compulsive behaviour (ICBs) as a result of their medication. Impulsive-compulsive behaviour is when a person can’t resist the temptation to carry out certain activities or has an overwhelming drive to act in a certain way. Examples of ICBs include (among others): excessive gambling, increased sexual thoughts and feelings, binge eating and compulsive shopping.

Although only a relatively small number of people with Pd experience this behaviour, it can have a significant impact on the person affected and those around them. We would therefore like to get a picture of the impact of ICBs and the support and information provided to carers in relation to understanding and coping with ICBs.

We hope that up to 18 carers in total from across the UK will take part in this study.

Who is involved?
The study is based at and funded by City University London. Parkinson’s UK, the national support and research charity, supports this study. The study has been reviewed and approved by the School of Health Sciences ethics committee at City University London.

What does the taking part involve?
Participation in the study means taking part in a telephone interview with a researcher. The interview will be arranged for a time convenient to you and should last no more that 45 minutes.

The findings from the study will be used to draw conclusions about the carer experience of ICBs and we will recommend ways to improve support.

For further information, my contact details are: Email: eamonn.mckeown.1@city.ac.uk, Tel: 020 7040 5917

Warm regards,

Eamonn

Dr Eamonn McKeown,
School of Health Sciences,
1 Myddelton Street,
City University London
London EC1V 0HB

#2
dear dr M
i think you are about to be inundated.

#3
I doubt it.

#4
I hope you are wrong Turnip as this type of study will be invaluable and could perhaps save some relationships in the future.

best wishes
vivian

#5
I am confused by the responses of Leyther and Turnip.

My husband suffered extreme side effects from Mirapexin and two years on we are all still picking up the pieces.

I will be happy to take part in any study that will prevent any family having to go through what we have had to.

#6
your confused! i was trying i say its a good thing and people will respond.
though if they are anything like mrs turnip they have forgotten about it.
so perhaps leyther is correct (he often is, he's a very clever chap).