Hi can you please tell me How to delete my picture thanks.
Hi Annette I’ve had pd since 2005 try to keep going cycle a bit walk my dog got to keep going my mother will be 90 in October I’ve got wife and 18 yr old daughter best wishes howard
I have undergone deep brain stimulation last year and it wasn’t as bad as I thought.I must say I was terribly nervous But as it turned out they put me to sleep tor the whole procedure It is not 100% but I think you will find iwill all be worth it . Do not worry you will be fine Ii wish you all the best
You are right. I agree with you.
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Hi I was 37 when I was told I had pd
I’m now 58 and 4 weeks had dbs so far so good it’s my frist time ever of speaking openly about pd
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Hi there am 59 and have had PD for 5 years this Nov… I also have rheumatoid arthritis which I have had for 20 years.
I am sure you will enjoy the forum. Any questions you have you can. Phone the helpline where there will be someone to answer your questions.
Take care and welcome to the forum
Babs
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Hi you have done the right thing and will always find someone to help you and support you with whatever you need please don’t be afraid to ask any of us if we can help you we will
Pete
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Hi downsvale welcome not only will you find good advice and support on here on the serious side of things you can also cry laughing if you find the right threads one thing for sure is you won, t be alone
Pete
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Welcome and enjoy what you can, and relax, we are all in the same boat, then out…then in…then …
You get the picture
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Hi Im new here too, after a 4 year break if that makes sense. Lost the original email you see.
Welcome back!
Hi
I’m 65 and I am an alcoholic - whoops - sorry - wrong problem - but that’s what it sometimes seems like when I tell people that I have PD. It’s like admitting to something that is somehow your own fault. I’m now in my 24th year post-PD diagnosis and although life is getting more difficult and restricted, I soldier on. It is important to keep busy - and to have targets - in 2018, I published a book (“The Alternative Christmas Letters”) through Amazon which has little to do Christmas and is only partly about my PD.
So keep smiling and always remember: the only time that you will be free of your PD is when you are dead - and with death as the alternative then living with PD doesn’t seem so bad.
I too have had back/mobility problems for years MRI and CT scans all showing my spine is knackered I was being looked into when Parkinsons was discovered Consultant thought it might be spinal stenosis but sent me for a Datscan and decided it was Parkinson’s Fell onto my knees on a stone floor and since then my walking and balance have become a massive problem. I feel the unsteadiness from below my knees. Whenever I mention any of my problems to do with my back ( i have osteoarthritis and osteoporosis) it is always related to the Parkinson’s. I have researched lots as i suppose everyone does and apparently the general feeling is the Datscan reading is not always reliable. We have to trust these doctors I know but the meds are not really doing much for me. I am constantly like a drunk.
I just joined the forum, im 53 and have advanced stage parkinsons which was left undiagnosed for 7 years and untreated tll now, i had to give up living at hhome as im wheelchair bound and have depression also, the mood swings with the unignosed illlness landed me in prison for 3 years until i was sent to a psychiatricc hospital who found lewry body and parkinsons im noww registed as a research ptient and want to leave my brain to the brainbank
Hi Willowjacky, and welcome to the forums. You’ll find lots of interesting discussions and many lovely people with experience and advice to share. We’re sorry to hear about your difficulties related to Parkinson’s, and we hope you’ll find our community a safe place to share your thoughts. Depression is an unfortunate companion to Parkinson’s. You can find some more information here https://shop.parkinsons.org.uk/products/depression-and-parkinson-s, and you can call us at 0808 800 0303. Have a look around, and again, welcome!
Best wishes,
Jason
Moderation Team