I am sure other members of the community will be able to share their experiences, but you may like to visit our Newly diagnosed with Parkinson’s section of the website, where you can access more information and support for you and your Dad about his new diagnosis.
You may also like to contact the Parkinson’s UK helpline on 0808 800 0303. Our helpline is open 9am-7pm Monday to Friday and 10am-2pm on Saturdays and it is a free confidential service providing support to anyone affected by Parkinson’s, made up of trained advisers including Parkinson’s nurses.
Hello Donna
Just seen your message. Story is similar to your dad.
I was diagnosed 2 years ago with the same and was prescribed Sinamet to see if it reduced my shaking left wrist.
The right one started about 6 months ago. I can stop the shakes for a short time by clenching fists or raising them up and down. I am almost. 70 and enjoyed a much more active life than before P. No other shakes or cramps yet. I can only imagine what it must be like to have advanced symptoms. I came off Sinamet some weeks ago as I thought the tremors had subsided but have recently gone back on to see if I get any change. I am aware of trembling when I am out and try to hide it. If I put my hands in pockets it looks like I’m fiddling with myself and if I raise them in the air it looks like I’m worshipping. I am taking CBD oil ( not Holland and Barrett rubbish) which definitely helps. I am pursuing the medical cannabis route perhaps alongside the Sinamet, as there are UK establishments who can supply medical CBD. If your father has a history of severe headaches and has tried a few of the heavier painkilling drugs then you may qualify to become a patient.
All the best.