Hi everyone ! Have been reading some of the topics so thought I’d join in. I was originally diagnosed with Corticobasal degeneration (CBD) in June 2017. However another consultant ,and following various scans etc, has now come up with Parkinsonism .whatever it is, it’s completely changed my life. I have lost confidence to participate in anything, having spent the best part of a year in denial. How do you come to terms with knowing you are physically unable to do the things you used to. I used to line dance,go for five mile walks and play guitar. Not anymore as my muscles have virtually gone and have no strength to even push a vacuum round the house. Going out on my own is a no-no as I tend to look downwards quite a lot so am not as aware of things around me-feel so vulnerable.
My consultant has just started me on Madopar and although it seems to have lifted my mood it’s early days.
I am 60 ,married with no children and on my own most days as hubby still working fulll time. Had to give up my job at Xmas as couldn’t keep up on the computer- left hand rigidity. I do have the company of two cockatoos!