I’ve joined up out of a strong need to be able to get info & support at a time when my mum’s PD has taken a downturn. We’re all over the place with worry at the minute, tbh.
Mum has been managing living independently (with a lot of support from us family) for about 5 years. She never used to have problems taking her pills at the right time.
However, in the run up to Xmas, I noticed she was starting to take them more erratically - then she got a cold & a mild UTI & it feels like all hell has broken loose.
She’s been up at all hours, very restless, feeling agitated - and is getting night/day mixed up. We’ve been getting calls at 11pm when she thinks it’s 11am.
She’s had antibiotics which have cleared up the bug (I hope) - but is finding her PD meds (Co-Careldopa) is wearing off quickly so she’s been popping them when she feels weak.
We’ve taken over monitoring them 1st by an alarmed pill dispenser (she worked her way around that one!), then by physically hiding them.
But this morning, she’d had 2 before 9am & was pretty ‘high’. Now she’s called saying she feels just dreadful & doesn’t know what to do with herself (no doubt an overdose).
I’m 48 with MS - the only other family around are my aunt (71 & with her own health issues) & a younger brother who has serious mental health conditions.
Anyway…all of that is a bit of a splurge, I know, but it’s been a terrible fw weeks…looking forward to getting some tips on the meds issue (am going to call her PD clinic tomorrow to ask for an urgent appointment)