I have just joined this forum today and wanted to introduce myself but am not sure how much to say.
It is four years since I was diagnosed with Parkinson's and it may seem odd that I haven't signed up sooner. It wasn't an absolute shock when I was told the news as my father had the condition for about 20 years and I sort of recognised some signs.
The medication I am taking seems to be working as the symptoms are often controlled although there are struggles and frustrations when some every day tasks are difficult. I do seem to be taking a lot of tablets.
Fortunately I am still able to work without too much discomfort or awkwardness.
I am also trying to continue as much as possible with my amateur music activities fitting in as much as possible while I am still reasonably able. Having played the clarinet for many years it was the deteriorating dexterity when playing that alerted me to the Parkinson's. I still play, but with less accuracy and certainly no fast passages. I can not imagine life without something musical to participate in. I have conducted an amateur wind band for some time and am trying to continue a little bit. It is tiring and turning pages of the score can be hit or miss, but the mild physical movements that are as close to exercising that I'll get are definitely beneficial until I start to flag.
I have recently had a go first at arranging music, and then was encouraged to have a go at composition. I have actually written a piece for orchestra which is intended to portray the battle to overcome some of the problems due to Parkinson's.
Oh dear, I am rambling.
So you may deduce that I am desperately doing many of the things I had thought I would do in my retirement whilst I am still able, about 10 years earlier than I planned.
Obviously I am worried and I suppose frightened about what may be in store for me (and my dear family) in the future. I try to avoid thinking about it, keep as busy as I can, bury my head in the sand when I am less busy and carry on taking the tablets hoping and praying that any decline is a long way off.
How does everyone else cope?